Stage 1: Establishing the domains for the measure
Stage 1 was aimed at identifying the domains for the instrument. This was based on a review of the qualitative literature and psychometric analysis of existing data. A conceptual model was developed to support this process. Feedback from consultation with different groups was also provided.
Methods and reports
Conceptual model
Aim: Develop a conceptual framework to support the development of the measure
Methods: Adaptation of an existing model
Results: Working conceptual model
Qualitative review
Aim: Review qualitative literature on how conditions or circumstances that can be influenced by health and social care affect quality of life
Methods: Targeted review of qualitative literature across four arms (Generic measures, Health conditions, Informal Carers, Social Care users) [Protocol (PDF, 992KB)]
Paper: Mukuria, C., Connell, J., Carlton, J., Peasgood, T., Scope, A., Clowes, M., Rand, S., Jones, K. and Brazier, J., (2022). Qualitative Review on Domains of Quality of Life Important for Patients, Social Care Users, and Informal Carers to Inform the Development of the EQ Health and Wellbeing. Value in Health.
Feedback: Summary feedback (PDF, 198KB) from governance groups and response
Psychometric analysis
Aim: Analyse existing measures to support qualitative review process in identifying relevant domains
Methods: Psychometric analysis generic measures using the Multi-instrument Comparison (MIC) data
Results: Summary of results from the psychometric analysis [Video]