Findings

The project began in May 2017 and was projected to last two and a half years, but was later extended by one year.

Interviews and surveys with patients, social care users, carers and the general public were conducted to explore what aspects of quality of life users think are important. The aim was also to identify the best questions to use to measure quality of life.

The project has six stages:

• Stage 1: Identify potential domains for the measure

• Stage 2: Generate a potential list of items/questions for each domain

• Stage 3: Test the face validity of potential items with users

• Stage 4: Psychometric testing of potential items with users

• Stage 5: Item selection

• Stage 6: Valuation of selected items by members of the general public

See the about section for a project overview.